Tuesday, July 31, 2018
I had a pretty good bout of Nausea on Friday so hubby took me to clinic. I got to have lots of blood work. Well scheduled a follow up with Doctor for 8/9, Well test results are back in and doctor wants me in his office tomorrow afternoon. When we were there Friday he thought it could be ulcer or may gallbladder. I am super nervous. I hate when they move appt up like that. I have anxiety and it just gets it going something fierce. Hubby calmed me down some. I just have to pray about it. I have to remember God is in control. This disease has already tried to take me out twice and failed. My Daddio always tells me I"m stronger than I think I am. Its really hard to remember that. I don't worry about me so much. When Lupus finally takes me I will be in Heaven with God. I will feel no more pain. But I do worry about my husband and kids. I hope they remember I have had a wonderful life. I hope they remember I'm no longer in pain. So if you can say a little prayer for me. In the back of my mind I"m sure its all fine. But with Lupus it all changes in and instants. I need to remember that
2 Chronicles 20:15 says'
"Do not be afraid or discouraged because of this vast army. For the battle is not yours, but God’s."
Now I"m off to take it all to God
Saturday, July 28, 2018
School Dreams
Okay I have not posted in a few days. Lupus raised its ugly head and not been feeling well. Had to leave work early yesterday which I hate. Blood test this morning could be Ulcer could be gallbladder could be who knows. LOL
Okay my post. I finally got the nerve to ask my boss to write my recommendation for school. She basically said no. Why because to go to school you can not cuss. And I cuss. I'm working on it I'm wanting to apply at a christian school and we must sign a code of conduct. I have been working very hard to stop cussing but do you know how hard that is when everyone does it? So if you are the praying sort send me some prayers to control my mouth. I am not giving up on my dream to go to school. I believe there is a reason it was placed on my heart. It just is not the time. I am not ready. So please don't let one little set back put away your dreams. Pray about them. Ask God for his Guidance. Ask a minister to pray with you. Ask me I'll pray for you. Just don't give up. Don't let one bad habit stop you from Greatness.
Saturday, July 21, 2018
Feeling Thankful but tired
Hubby took me to Terre Haute today. I don't get around much as my Lupus makes car rides miserable. We discovered and adorable christian bookstore called "The Open Door Christian Bookstore". We also had breakfast at Pats Cafe by the Boot Opry, Lunch at Fuddrucker and of course checked out Terre Haute Bowling Center.
Hubby Got me a new bible cover, cup and bible highlighter. All purple but my bible cover.
Now I'm so exhausted I can barely think. My legs feel like someone took a bat to them, But I had a wonderful day. Sometimes you just have to tell Lupus to "Bite Me." and go on with your life.
Thursday, July 19, 2018
Depleted
I want to go back to school to learn to be a christian counselor. My ultimate goal would be to start a ministry for people with chronic illness. My husband told me tonight I should not go into ministry to help people but to get closer to God. He doesn't think I have good intentions. But I do I have prayed about this. It just did not pop in my head. It was laid on my heart. The program is at a school I have never looked into. So now i sit doubting myself. Could I even get accepted? I haven't been in school for 30 years. How would I pay for it? How will I manage time, work and my illness? Am I just living in a dream world. I truly believe there is a need for this ministry. But when the most important person in your life does not support you how do you believe in yourself?
Tuesday, July 17, 2018
Morning Phone Calls
My Husband call every morning between 5:00 AM and 5:30 AM. I get up for 5:00 AM for work. He always seems to call at the worst possible moment. I'll be in middle of putting my hair up in ponytail and its still half in brush, my pants half on, one arm in shirt or mouth full of toothpaste you get the picture. I truly think he waits for the worst possible moment to call. It drives me absolutely insane. He always says the same exact thing every morning " Whatcha doin babe?" I"m doing the same thing I've been doing for the past 3 years I'm getting ready for work. Again totally drives me nuts.
I can never understand why he has to call me every morning when he knows I'm trying to get ready for work.
Recently I listened to the Audio book by Laura Story "When God Doesn't fix it" I thought it was going to be about chronic illness which it is sort of. Her husband has a brain tumor and while its not cancer. Removal of the tumor does leave them with some challenges such as short term memory loss. The book was not exactly what I thought it would be. I've been reading every christian book I can find about chronic illness. The book was written for Laura's viewpoint as the spouse.
I had never truly put much about how my Lupus has impacted my husband Scott. At the time in our life when out children had left the nest and life should be good. I got Lupus. I understand the impact Lupus has on my life but what about Scott. One day he had a totally happy wife the next he had a wife he didn't know would live or die. Have you truly thought about the impact on your significant other?
Scott in now in charge of laundry, grocery shopping (not to sad about that one), he no longer takes weekend fishing trips with the guys, He drives everywhere we go.
After Listening to the book I realized that annoying phone call every morning, the reason he makes it? He calls to see if I woke up!!! He calls to see if I'm dead! Can you imagine wondering everyday if your spouse woke up? So after realizing this I now answer that annoying phone call "Morning Babe" but he still calls at the worst time!!!
Sometimes we need to step back and remember this is not only our diagnosis, but the whole families, We fight as a family. I am very blessed to have a very strong backbone in my husband. So every morning I pray for him and Thank God for his Blessing of my husband.
Here is the link to Laura's book if you would like to read it. Its very good
https://www.christianbook.com/doesnt-lessons-wanted-learn-truths-without/laura-story/9780718036973/pd/036973
Monday, July 16, 2018
The oldest child drops a bomb
So my oldest Tate came down to tell us he's moving to Georgia! Georgia! That's 10 hours away from mama!! What is he thinking. Tate is the child who does most of my appointments with me. But I'm hoping it's a good thing for him. I have to put it all in Gods hands. Stress can cause a flare and we don't need that. On the upside I finally have a vacation spot if I'm ever able to travel that far.
Sunday, July 15, 2018
Welcome to my Blog!
Hello Butterflies. Welcome to my blog. My name is Paula. I am a Wife, Mom of 2, Grandma of 3, I am a believer in Christ (although I cuss a little) and I am living with Lupus. On this blog some post will be happy some not so happy. But I will be truthful about my Journey. Lupus has totally changed our family, But we are stronger with it. We will not give up the fight.
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